Tuesday, January 6, 2009

Praising God in Tough Times

It truly seems easier to praise God when things are going well and life is smooth (in our eyes). This is not rocket science. We can even have spiritual highs where we seem so thankful for the life that God has given us and for the events He ordains to occur in our lives.

Other times it doesn't feel like it comes so naturally. Life is difficult and sometimes it hurts. Occasionally it seems impossible to finish the race we have set before us. Today was one of these days.

We traveled to Madison today for what we thought was a routine growth ultrasound and pre-natal visit. It was supposed to be our last visit prior to heading down to Madison once Abi begins labor (still looking like the end of January or early February for delivery). All signs prior to today indicated that we were dealing with an isolated cleft lip and palate. It was initially troubling to hear, but we were ready for the challenge the Lord was giving us.

Our ultrasound today revealed that Titus has a dilated, and likely obstructed, bowel. We were referred over to the Children's Hospital in Madison and fortunately the pediatric surgeon had an opening to see us in the afternoon. The bottom line is that Titus is having problems in his lower intestine. One likely diagnosis is that his anus failed to develop properly and/or did not develop at all (anorectal malformation is the technical term if you would like to google it). This will usually result in the inability of the baby to pass stool. If this diagnosis is confirmed, Titus will have to be transferred to UW Children's Hospital (from Meriter hospital) shortly after birth. A surgery will will then take place a day or two after Titus is born to allow his colon to empty into a colostomy bag. Another surgery will take place after 3-4 months (or so) to place a new anal opening in Titus's bottom. And, after that surgery is healed, the colon will be reattached to the newly formed anus. Lifelong bowel problems cannot be ruled out. Now, there is a chance that other issues (either better or worse) are present with his colon, but the odds are with the one mentioned above. We will just have to wait and see.

The bigger issue now is that we have seen a pattern. It is almost inevitable that a syndrome, of some type, is present in Titus. Not knowing exactly what syndrome is quite difficult. What other problems could be present at birth are only speculative at this point. Again, we will just have to wait and see. Some time after birth we will meet with a geneticist and start putting the pieces together.

So back to my point above. Praising God is not something to be reserved for when "the sun is shinning down on me" or when "the world is all as it should be" (again, in our eyes). I take great comfort (and perhaps I have said this before) in the fact that God didn't wake up one day and say "Oh...Wow...Little Titus has a cleft palate and a some problems with his colon. I didn't see that one coming." No, God knew this would happen. God knew the parents to whom Titus would be born. God knew the birth order that Titus would come. And God promises never to give us more that he will equip us to handle. And God will work it out for good.

On the drive home from Madison a song started on the CD player by the David Crowder Band entitled "Come and Listen". The bridge in the song repeats "Praise our God, for He is Good!" That phrase was as true this morning when we left our home as it was on our return from Madison tonight. We may not be screaming it from the top of our lungs at this point, but the fact that I could even mouth the words along with the song tells me that we are on the right track.

So when we think about weeks in the neonatal ICU, 5 surgeries before his first birthday, the possibility of numerous more (possibly life threatening) diagnoses, coordinating the lives of our other 3 children (all ages 4 and under) during this time, and the rest of the unknown, it is very comforting to know that we have a God who loves and cares for us. It was this God who knit Titus together in Abi's womb. It was this God who voluntarily allowed His own son to go through pain (much worse than Titus will ever experience) in the form of rejection, betrayal, beatings and a Crucifixion in order for us to be saved from our sins and have eternal life with Him. Remembering this makes it easy for me to see how true that phrase really is.

"Praise our God, for He is Good!" (all the time!)

7 comments:

The Kings said...

Wow, what a testimony you guys are to God's grace. We are praying for you and excited to be the tangible body of Christ for you and the kids.

Anonymous said...

I am amazed at your strengh and humbled by it as well. Incredible.
I will be in prayer for you and your family and baby Titus. Lifting you up each day. I will pass the info on to the MOPS moms. Love - Greta Petersen

Jen said...

We've been praying for you guys! I love the ultrasound picture. So precious.

Anonymous said...

Praying for you and wanting to hug you today. Please know that you are loved by us. The VandeLunes

Anonymous said...

Hi Normington family, sorry to hear about the recent news, but your words are definitely an encouragement. We pray for you guys and baby Titus often and will be thinking of you in the coming weeks. Much love, -the Geigers

Colleen said...

My name is Colleen and I used to work at Moundview. Nancy sent me your blog a few months back and I've been checking on Titus. My granddaughter was born in October with VACTERAL association. She has an anorectal malformation. She also has a cloaca which means there is only one opening for her vagina and urethra. She had a colostomy placed the day she was born and a vesicostomy two days later. Dr. Lund is amazing! If you would like to contact me, please feel free to do so. I work a lot but I will get back to you as soon as I can. I'm sure you could meet Olivia anytime. She is the most beautiful little angel I've ever seen. You can read more about her at http://www.caringbridge.org/visit/oliviarosemichaels

You can contact me anytime. My most accessable email is ilovenursing@mchsi.com

Anonymous said...

Praising God, when the effects of sin in this world, cause us sadness and pain. Looking to Him as our strength, not as the cause of our situation, but as the source of our strength though it.

Do not blame God for the consequent of sin, but thank Him, that He sent his son to free us from it's spiritual consequences. That trough faith and trust in his son Jesus Christ, we can endure that which Adam brought into this world at his rebellion, and we through our own rebellion continue.

Praise God for his SON. For the freedom we have in Him. And for the Grace he gives us to endure all of the thorns in our flesh, which we to our own detriment, would have removed.

Keep Praising God in Good times and in sadness.